Below is a list of definitions used throughout the Health Research Hub
The Australian Health Research Alliance is the voice of 12 National Health and Medical Research Council (NHMRC) accredited Research Translation Centres and two Emerging Research Translation Centres (Centres). Each Centre is a partnership of health services, local hospitals and primary care organisations connected to research centres and universities to address locally determined health priorities.
AHRA provides a forum for the Centres to collaborate on matters of national relevance for research translation. For more information about AHRA, please visit the AHRA website.
Co-design (or participatory design) is an approach to design while actively involving all stakeholders (e.g. consumers, community members, health care providers and researchers) in the design process to help ensure the result meets their needs and is usable.
A group of people sharing a common interest (e.g. cultural, social, political, health, economic interests) but not necessarily a particular geographic association. Different types of communities are likely to have different perspectives and approaches to their involvement in research.
Patients and potential patients, their carers, family members and friends, and people who use health care services.
Collectively, ‘consumers’ and ‘community members’ may be referred to as ‘the public’.
Someone who voices consumer perspectives and takes part in the decision-making process on behalf of consumers. This person may be nominated by, and may be accountable to, an organisation of consumers. The consumer representative may have a narrower view if speaking on behalf of their organisation or be connected to a representative for a wider community.
A consumer representative may be appropriately trained or undergo training and be supported to advocate on behalf of a community.
Co-production is a way of working that involves people who use health and care services, carers and communities in equal partnership; and which engages groups of people at the earliest stages of service design, development and evaluation.
Research with a human health focus.
Continuous and ongoing effort to measurably improve the efficiency, effectiveness, performance, accountability, outcomes, and other indicators of quality in healthcare.
An honorarium is an honorary reward (payment) for voluntary services and is not assessable income and not deductible. The Australian Tax Office does not require declaration of honorarium payments. However, Centrelink does require declaration of honorarium payments as reportable income, which may impact other payments.
Out-of-pocket expenses that a person would have incurred in participating in an activity, such as travel and parking costs.
A person, group or organisation with a vested interest or stake in the decision-making and activities of an organisation or project. This might include members of consumer organisations, professional bodies, government agencies, non-government organisations, healthcare services, industry, research organisations and research funders as well as consumers and community members. Stakeholders can provide support or expertise and may influence decisions about the research and its findings.
Sources of definitions