Key Resources

Here are some key Australian and international resources for consumer and community involvement. This list has been curated to ensure resources are of high quality, evidence-based and reflect best practice principles of consumer and community involvement. We are constantly coming across great resources and will continue to update this list regularly. If you know of a great resource that has not been listed here or a broken link, please let us know.

Resources for Consumer and Community Involvement Adoption Within Organisations (Coming Soon)

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Frameworks for Consumer and Community Involvement

Frameworks for Levels of Engagement

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Frameworks for Consumer and Community Involvement Throughout the Project Cycle

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Frameworks for Evaluation of Consumer and Community Involvement

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Resources for Good Practice in Consumer and Community Involvement

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Working with Aboriginal and Torres Strait Islander Communities

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Working with Priority Populations

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Toolkits

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Training

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Key Peer-Reviewed Literature/Databases

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Approaches to Consumer and Community Involvement

Project or Steering Committee Consumers may be involved as members of a larger project or steering committee to provide broad oversight and input from a lived experience perspective. This involvement may be for a government, professional body or organisation level committee, a board or board sub-committee or a research project. All committees should have a […]

A consumer advisory panel is a high-level group made up of consumers and or community representatives. Established by health, research or healthcare organisations, consumer advisory panels can provide consumer perspectives on relevant issues across a range of research projects, provide input into the design of research and grant proposals, review policies, advocate for people with […]

Consultation is a structured approach that focuses on gathering insights, feedback or advice on specific research, healthcare improvement or project activities, policies, strategies or priorities. The consultation may occur as a once off, ad hoc, over a short period of time (weeks to months), or for a specific purpose/outcome. There are various methods that consultation […]

Consumer Advocacy Consumer advocacy is an approach where individuals with lived experience work to champion the rights, needs and priorities of the broader patient and carer community across healthcare, research and policy development. By doing so, consumer advocates can ensure that the lived experience perspective is embedded in decisions being made. Consumer advocates take on […]

Consumer Partnerships Consumer partnership in health and medical research is an approach in which researchers and/or healthcare providers and consumer organisations actively and meaningfully work together to design and conduct research or healthcare improvement projects. Consumer partnerships usually refer to a broad collaboration between researchers and consumer organisations or groups and may involve one or […]

Ways of Working with Consumers in Research

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Payment, Reimbursement and Recognition

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Supporting Consumers

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Templates

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Resources for Consumers

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Co-Design & Co-Production

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