Key Resources
Here are some key Australian and international resources for consumer and community involvement. This list has been curated to ensure resources are of high quality, evidence-based and reflect best practice principles of consumer and community involvement. We are constantly coming across great resources and will continue to update this list regularly. If you know of a great resource that has not been listed here or a broken link, please let us know.
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Frameworks for Levels of Engagement
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Frameworks for Consumer and Community Involvement Throughout the Project Cycle
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Frameworks for Evaluation of Consumer and Community Involvement
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Guiding principles to ensure safe, respectful, responsible, high quality and beneficial involvement of Aboriginal and Torres Strait Islander Peoples and communities in research from the Australian government research agency.
Guide on how to engage ethically with Aboriginal and Torres Strait Islander for research developed by the Australian Institute of Aboriginal and Torres Strait Islander Studies (AIATSIS).
A discussion paper following a national study on the implementation of ethical processes in Aboriginal and Torres Strait Islander health research (Murru Minya study). The paper provides an overview of research principles and governance for ethical and culturally appropriate ways of working with Aboriginal and Torres Strait Islander communities.
A discussion paper and literature review on participatory research methods to centre and increase Indigenous voices in Indigenous research.
Tips and resources for co-designing health projects with Aboriginal and Torres Strait Islander people and communities.
Adapted from the 8 Aboriginal ways of learning, this toolkit has been developed to support co-design with Aboriginal communities.
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Success Stories
Consumer and community involvement in cell mechanobiology ensures that research aligns with patient needs and societal impact
“Eye-opening” is how I would describe my experience being part of the Emergency Care consumer advisory panel. Not only was I able to share my experience and influence change, I got a glimpse into what happens behind the scenes in research…
Consumer and community involvement goes beyond patient interaction. Through this project, I learned different ways to work with consumers and the value we got from their input went beyond my expectations…
Without the voice of community, these projects would never be successful. When working with the different mobs, it’s important to take time to get to know them…
Stroke has a big impact on our Vietnamese community but people are not aware of the warning signs. We were invited to work with the researchers to develop something that will be helpful for our community…