Key Resources
Here are some key Australian and international resources for consumer and community involvement. This list has been curated to ensure resources are of high quality, evidence-based and reflect best practice principles of consumer and community involvement. We are constantly coming across great resources and will continue to update this list regularly. If you know of a great resource that has not been listed here or a broken link, please let us know.
Foundations of Consumer and Community Involvement
The Statement aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research. It is under review in 2025. Appendix 3 of the Statement, ‘the research cycle’, helps researchers plan and implement meaningful consumer and community involvement across all […]
Advice on best practice consumer involvement in MRFF-funded health and medical research including principles for consumer involvement and implementation advice.
The Strategy is an implementation resource to strengthen partnerships between health policy makers and the community.
The standards provide a flexible framework for effective public involvement in research, promoting reflection, learning from both successes and failures, and supporting continuous improvement across diverse methods and contexts.
The Framework deepens understanding of trauma and its related concepts, offering guiding principles and outlining key domains to support trauma-informed approaches in everyday work.
Frameworks for Consumer and Community Involvement
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The Statement aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research. It is under review in 2025. Appendix 3 of the Statement, ‘the research cycle’, helps researchers plan and implement meaningful consumer and community involvement across all […]
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Inclusive Engagement
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Practical Implementation
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Tools and Resources
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Success Stories
A dedicated codesign team – including multidisciplinary clinicians, researchers, multicultural health literacy experts, and members of the Vietnamese community – has been working to improve stroke awareness in the Vietnamese community in South West Sydney. Their goal was to help people better recognise the signs of stroke, understand the importance of calling an ambulance quickly, […]
The Australian and New Zealand Intensive Care Research Centre (ANZIC-RC), based at Monash University, leads large-scale clinical trials and research to improve outcomes in intensive care. In 2022, with the support of the Centre for Research Excellence to Transform Outcomes of Critically Ill Patients in Intensive Care and the ANZIC-RC Board, the ANZIC-RC Consumer and Community Connection Committee […]
Conducting research with Aboriginal and Torres Strait Islander communities requires a respectful, ethical, and culturally sensitive approach. This case study provides comprehensive guidance on how to engage with communities effectively, ensuring that research practices honour their unique cultural heritage and lived experiences. Written Resources Steps for Involving Aboriginal and Torres Strait Islander Communities – prepared […]
Bridging Science and Community: The Power of Consumer and Community Involvement in Basic Science Research In November 2024, the Western Australia Health Translation Network (WAHTN) CCIProgram hosted a forum to explore the integration of consumer and community involvement in basic science research across Western Australia. The event featured researcher-consumer teams co-presenting on the consumer and […]
Prof Diana Egerton-Warburton shares her experience, key learnings and helpful resources that supported her in establishing a consumer advisory panel for her research.