A dedicated codesign team—including multidisciplinary clinicians, researchers, multicultural health literacy experts, and members of the Vietnamese community—has been working to improve stroke awareness in the Vietnamese community in South West Sydney. Their goal was to help people better recognise the signs of stroke, understand the importance of calling an ambulance quickly, and learn how healthy […]
The Australian and New Zealand Intensive Care Research Centre (ANZIC-RC), based at Monash University, leads large-scale clinical trials and research to improve outcomes in intensive care. In 2022, with the support of the Centre for Research Excellence to Transform Outcomes of Critically Ill Patients in Intensive Care and the ANZIC-RC Board, the ANZIC-RC Consumer and Community Connection Committee […]
Evidence-based best practice approaches on how to engage with consumers and communities effectively and meaningfully. This short course is divided into two components: an online self-paced learning module and a half-day intensive and interactive workshop.
A nationally informed, evidence-based resource designed to help health and medical research organisations embed meaningful consumer and community involvement (CCI) into their systems. Developed through extensive stakeholder engagement and implementation research, this guide covers ethical, policy, logistical, and structural considerations.
Developed by the VCCC Alliance, this role description clearly defines the expectations, responsibilities, and scope of a participant’s involvement in a Cancer Consumer Advisory Committee. It helps ensure transparency, alignment, and mutual understanding between researchers and consumer/community members.
Conducting research with Aboriginal and Torres Strait Islander communities requires a respectful, ethical, and culturally sensitive approach. This case study provides comprehensive guidance on how to engage with communities effectively, ensuring that research practices honour their unique cultural heritage and lived experiences. Written Resources Steps for Involving Aboriginal and Torres Strait Islander Communities – prepared […]
An organisation’s commitment to consumer and community involvement may be captured in a formal document like a policy. When approved by Boards, policies can become a rule of practice for which there is reporting and accountability. Here is a template for a Consumer and Community Involvement Policy that can be adapted to meet your particular […]
A practical guide designed to help individuals understand and progress through the steps of becoming a consumer advisor within health organisations. It demystifies the process and supports consumers with clear expectations and guidance.
The NHMRC and CHF Statement of Consumer and Community Involvement in Health and Medical Research suggests different ways that researchers are able to involve consumers in their projects throughout the process.
The National Health and Medical Research Council framework breaks down the research process to highlight how consumers can be meaningfully involved at every stage of the project lifecycle.
Key considerations and good practice when reimbursing consumers involved in health research.
This report outlines work to identify how to effectively measure the impact of consumer and community involvement in health research. Specifically, the team investigated whether any frameworks or models already existed for measuring CCI impact that could be used more broadly.