Key Resources
Here are some key Australian and international resources for consumer and community involvement. This list has been curated to ensure resources are of high quality, evidence-based and reflect best practice principles of consumer and community involvement. We are constantly coming across great resources and will continue to update this list regularly. If you know of a great resource that has not been listed here or a broken link, please let us know.
Foundations of Consumer and Community Involvement
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Frameworks for Consumer and Community Involvement
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Inclusive Engagement
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Practical Implementation
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Guidelines for remuneration and reimbursement of consumers across different levels of involvement in health and medical research with good practice examples.
General guidelines for payment, reimbursement and recognition of consumers across different levels of involvement and examples of what those activities may look like. These guidelines provide general advice taking into account the range of contextual factors that need to be considered for each project or activity. Please note, some funders or organisations may have their […]
The key considerations when preparing a budget and a cost calculator.
Key considerations and good practice when reimbursing consumers involved in health research.
The Honorarium Guidelines ensure that lived-experience contributions from consumers, carers, families and community members are recognised through fair, culturally respectful payments. They cover who is eligible, address tax and Centrelink concerns, specify activities and payment levels – including additional recognition for Aboriginal and Torres Strait Islander cultural leadership – and help make participation in research […]
Tools and Resources
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Success Stories
A dedicated codesign team – including multidisciplinary clinicians, researchers, multicultural health literacy experts, and members of the Vietnamese community – has been working to improve stroke awareness in the Vietnamese community in South West Sydney. Their goal was to help people better recognise the signs of stroke, understand the importance of calling an ambulance quickly, […]
The Australian and New Zealand Intensive Care Research Centre (ANZIC-RC), based at Monash University, leads large-scale clinical trials and research to improve outcomes in intensive care. In 2022, with the support of the Centre for Research Excellence to Transform Outcomes of Critically Ill Patients in Intensive Care and the ANZIC-RC Board, the ANZIC-RC Consumer and Community Connection Committee […]
Conducting research with Aboriginal and Torres Strait Islander communities requires a respectful, ethical, and culturally sensitive approach. This case study provides comprehensive guidance on how to engage with communities effectively, ensuring that research practices honour their unique cultural heritage and lived experiences. Written Resources Steps for Involving Aboriginal and Torres Strait Islander Communities – prepared […]
Bridging Science and Community: The Power of Consumer and Community Involvement in Basic Science Research In November 2024, the Western Australia Health Translation Network (WAHTN) CCIProgram hosted a forum to explore the integration of consumer and community involvement in basic science research across Western Australia. The event featured researcher-consumer teams co-presenting on the consumer and […]
Prof Diana Egerton-Warburton shares her experience, key learnings and helpful resources that supported her in establishing a consumer advisory panel for her research.