A clear, step-by-step guide for embedding meaningful consumer and community involvement into health and medical research systems. The Handbook is designed to be adaptable and user-friendly, encouraging organisations and individuals to tailor it to their specific context and needs. There are also dedicated resources for consumers on topics such as approaching an organisation and assessing […]
A series of six self-paced online modules, providing general and practical information and strategies to meaningfully conduct and embed consumer and community involvement in research and healthcare improvement projects.
The toolkit provides practical advice for researchers and research organisations wishing to conduct patient-centred clinical trials. Using an interactive map, the Toolkit provides guidance and tools to help plan, deliver, evaluate and report consumer and community involvement and engagement activities. The Toolkit also contains a small but growing collection of dedicated resources for consumers and […]
Practical strategies to seek and support diverse engagement and participation, as well as tips for success.
This framework lists a range of strategies that enable current or potential consumers to participate in service planning and decision making. Additional considerations for Culturally and Linguistically Diverse communities are included.
The NSW Government, Agency for Clinical Innovation, Co-design Toolkit: Working Together with Aboriginal Communities is designed to support respectful, culturally grounded collaboration with Aboriginal communities in service design and improvement. The toolkit emphasises the importance of bringing Aboriginal perspectives—ways of being, knowing, and doing—to the forefront of the co-design process. It draws on the 8 […]
If you are looking at co-design with Aboriginal and Torres Strait Islander people and communities, this website provides tips and resources around best practice for successful engagement.
The Lowitja Institute’s 2020 discussion paper, Aboriginal Participatory Action Research: An Indigenous Research Methodology Strengthening Decolonisation and Social and Emotional Wellbeing, defines and promotes Aboriginal Participatory Action Research (APAR) as a transformative Indigenous research methodology.
This discussion paper builds on findings from the Murru Minya study, a national investigation into how ethical processes are implemented in Aboriginal and Torres Strait Islander health research. It provides a comprehensive overview of the principles and governance frameworks that support culturally safe, respectful, and ethical research practices.
The purpose of the AIATSIS Code of Ethics for Aboriginal and Torres Strait Islander Research is to promote ethical, responsible, and culturally respectful research practices that uphold the rights and interests of Aboriginal and Torres Strait Islander peoples.
The VCCC Alliance Model of Consumer Engagement draws upon the consumer involvement capability model of Cancer Australia and outlines five levels of consumer participation.
The Framework deepens understanding of trauma and its related concepts, offering guiding principles and outlining key domains to support trauma-informed approaches in everyday work.