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Consumer advocacy is an approach where individuals with lived experience work to champion the rights, needs and priorities of the broader patient and carer community across healthcare, research and policy development. By doing so, consumer advocates can ensure that the lived experience perspective is embedded in decisions being made. Consumer advocates take on roles like […]
Consumer partnership is a collaborative approach where researchers, healthcare providers, and consumer organisations work together in a meaningful and active way to design and conduct research or healthcare improvement projects. These partnerships often involve broad collaboration between research teams and consumer organisations or groups, with one or more consumer partners helping to guide the direction […]
The National Health and Medical Research Council framework breaks down the research process to highlight how consumers can be meaningfully involved at every stage of the project lifecycle.
The NHMRC and CHF Statement of Consumer and Community Involvement in Health and Medical Research suggests different ways that researchers are able to involve consumers in their projects throughout the process.
The Framework for Consumer and Community Involvement, developed by Health Translation Queensland, guides researchers to meaningfully involve consumers throughout the research cycle. Developed through co-design, it outlines flexible principles, roles and tools to support genuine partnership. Its aim is to improve research quality, relevance and impact, and it is freely available for broad use and […]