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Consumer advocacy is an approach where individuals with lived experience work to champion the rights, needs and priorities of the broader patient and carer community across healthcare, research and policy development. By doing so, consumer advocates can ensure that the lived experience perspective is embedded in decisions being made. Consumer advocates take on roles like […]
Consumer partnership is a collaborative approach where researchers, healthcare providers, and consumer organisations work together in a meaningful and active way to design and conduct research or healthcare improvement projects. These partnerships often involve broad collaboration between research teams and consumer organisations or groups, with one or more consumer partners helping to guide the direction […]
An Involvement Agreement is a formal document that outlines the involvement activity, the expectations, roles and responsibilities of consumers and community members and researchers.
The Terms of Reference (ToR) for a Consumer Advisory Panel clearly define the panel’s purpose, structure and expectations. It serves as a foundational document that guides the panel’s operations and ensures alignment among all stakeholders. Please adapt the content of the template to suit the specific context and needs of your involvement opportunity.
Developed by the VCCC Alliance, this role description clearly defines the pupose, expectations and responsibilities of a Consumer Representative. Please adapt the content of the template to suit the specific context and needs of your involvement opportunity.
To reach the right audience, your flyer should be easy to share both online and offline. Here are some key tips:
An Expression of Interest (EOI) is a transparent way to identify individuals interested in consumer and community involvement opportunities. It helps match consumers to projects based on their suitability and interest.
A form to be signed by adults and minors to acknowledge the use of an image and/or audio in which they are the subject, and/or the use of their personal information. Please note form does not replace a participant information and consent form.
An organisation’s commitment to consumer and community involvement may be captured in a formal document like a policy. When approved by Boards, policies can become a rule of practice for which there is reporting and accountability. Here is a template for a Consumer and Community Involvement Policy that can be adapted to meet your particular […]
Developed by the VCCC Alliance, this role description clearly defines the expectations, responsibilities, and scope of a participant’s involvement in a Cancer Consumer Advisory Committee. It helps ensure transparency, alignment, and mutual understanding between researchers and consumer/community members.