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Consumer advocacy is an approach where individuals with lived experience work to champion the rights, needs and priorities of the broader patient and carer community across healthcare, research and policy development. By doing so, consumer advocates can ensure that the lived experience perspective is embedded in decisions being made. Consumer advocates take on roles like […]
Consumer partnership is a collaborative approach where researchers, healthcare providers, and consumer organisations work together in a meaningful and active way to design and conduct research or healthcare improvement projects. These partnerships often involve broad collaboration between research teams and consumer organisations or groups, with one or more consumer partners helping to guide the direction […]
The Statement aims to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research. It is under review in 2025. Appendix 3 of the Statement, ‘the research cycle’, helps researchers plan and implement meaningful consumer and community involvement across all […]
Advice on best practice consumer involvement in MRFF-funded health and medical research including principles for consumer involvement and implementation advice.
The Strategy is an implementation resource to strengthen partnerships between health policy makers and the community.
The standards provide a flexible framework for effective public involvement in research, promoting reflection, learning from both successes and failures, and supporting continuous improvement across diverse methods and contexts.
A series of six self-paced online modules, providing general and practical information and strategies to meaningfully conduct and embed consumer and community involvement in research and healthcare improvement projects.
A clear, step-by-step guide for embedding meaningful consumer and community involvement into health and medical research systems. The Handbook is designed to be adaptable and user-friendly, encouraging organisations and individuals to tailor it to their specific context and needs. There are also dedicated resources for consumers on topics such as approaching an organisation and assessing […]
Free 30 minute self-paced online course that describes the fundamentals of consumer and community involvement in health research. Designed for consumers, community members, researchers, administrators, policy makers and organisations involved in health research. Participants will receive a certificate of completion at the end of the course.
The Australian Clinical Trials Alliance website provides advice and tools to assist researchers and research organisations to effectively evaluate consumer involvement.
An Involvement Agreement is a formal document that outlines the involvement activity, the expectations, roles and responsibilities of consumers and community members and researchers.
The Terms of Reference (ToR) for a Consumer Advisory Panel clearly define the panel’s purpose, structure and expectations. It serves as a foundational document that guides the panel’s operations and ensures alignment among all stakeholders. Please adapt the content of the template to suit the specific context and needs of your involvement opportunity.
Developed by the VCCC Alliance, this role description clearly defines the pupose, expectations and responsibilities of a Consumer Representative. Please adapt the content of the template to suit the specific context and needs of your involvement opportunity.
To reach the right audience, your flyer should be easy to share both online and offline. Here are some key tips:
An Expression of Interest (EOI) is a transparent way to identify individuals interested in consumer and community involvement opportunities. It helps match consumers to projects based on their suitability and interest.
An organisation’s commitment to consumer and community involvement may be captured in a formal document like a policy. When approved by Boards, policies can become a rule of practice for which there is reporting and accountability. Here is a template for a Consumer and Community Involvement Policy that can be adapted to meet your particular […]
Developed by the VCCC Alliance, this role description clearly defines the expectations, responsibilities, and scope of a participant’s involvement in a Cancer Consumer Advisory Committee. It helps ensure transparency, alignment, and mutual understanding between researchers and consumer/community members.
Evidence-based best practice approaches on how to engage with consumers and communities effectively and meaningfully. This short course is divided into two components: an online self-paced learning module and a half-day intensive and interactive workshop.